Mailing Address:
CORNELIA DE LANGE SYNDROME FOUNDATION INC
302 WEST MAIN STREET # 100
AVON, CT 06001-3681

Telephone Numbers and Contact information
Phone #:(262) 241-5441 Jane Kelley in Mequon, Wi
Phone #:(800) 753-2357
Phone #:(800) 223-8355
Phone #:(866) 676-8166
Phone #:
Fax Number:(860) 676-8337

Web Page:  www.cdlsusa.org
E-mail to:   info@cdlsusa.org

Program Details:
Operating Agency: Cornelia de Lange Syndrome Foundation, Inc (Private, Non-Profit)
Person In Charge: Information Coordinator:Barbara Koontz
Hours: Monday thru Friday 9am. - 5pm. eastern time
Eligibility: Information available to all interested families.
Fees: None.
Intake Process: Call for more information.
Service Area: Nationwide.

Program/Service Notes:
A family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.

This information was last updated on 08/04/2008

This information is provided as is with no guarantee as to the accuracy of the information. Information is considered to be accurate as of the date of the last update, printed above. Family Resource Connection  may not be held liable for misuse of this information.